Mondays with Marlene

In my opinion ...

Lots of things change when you are incapacitated and in pain. In fact, almost everything changes, but there is a way to do most daily tasks; ask for advice from your health care professional, think outside the box or just brain storm with friends and family. Mind you, you don’t want to ask the kids for advice on how to have sex with their dad, but it’s surprising what young minds come up with to solve some of those everyday problems. Since my husband and I are retired and don’t have any young ones running around the house, we’ve tried to figure things out for ourselves, often by trial and error. One thing I always did, though, was to ask my healthcare-givers if it was safe for me to do things such as vacuum, do laundry and clean toilets (the housecleaning triathlon)

Since I’ve been called a neat freak more than once in my life, you can imagine that watching dust bunnies grow under the bed pretty much made me crazy, so I had to figure out how to clean the house. What ended up working well for me, was a great husband who is probably the best string mop floor washer in the world, and breaking the job up into do-able increments. That was a challenge in itself since I’ve never in my life broken any job into small increments, but now I had no choice. I ended up dusting one day, cleaning the bathroom, kitchen sink and so on the second and vacuuming, which I found very hard, the third day and then my husband washed the floors. Presto – small increments from a “do it all now or the world will end type of gal” and I had a clean house. In fact it worked so well even though I am able to do more now, I still clean the same way. It made so much sense that I don’t ever want to put a full day into housecleaning again.

Another item that was a great help, especially early on in the relearning process, was one of those reacher things. I don’t know what they are really called but there is a handle and a trigger and a gripper so you can reach things that are too high for you and being me, I even used it to pick up bits and pieces off the floor, or the magazine I dropped or a few times to pinch my sweet husband right on the butt. Now that’s thinking outside the box! You can do it too.

Mondays With Marlene

In my opinion....

When I was in grade school, I was madly in love with the boy next door whose name was Bill, but the bills I’m dealing with these days are not the least bit loveable. People-type Bills come in all sizes, shapes and personalities, but the paper bills I am now involved with are all big. Very big. In fact so big that they are painful.

Been there done that? I’ll bet you have. Appointments with doctors, physiotherapists, psychologists, and heaven knows who else, and the bills keep coming. Whether the pain you are dealing with was the result of a car accident, a fall, or is part of that big black hole of undetermined, I can guarantee you have not only had to deal with the pain, but with the painful business of paying bills. There is no question that those of us lucky enough to live in Canada have a pretty good medical system, but it’s not perfect, doesn’t pay for everything and can drop us into an endless round of bills that we often don’t have enough money to pay, or have to pay in instalments – sometimes for the rest of our lives. Granted, we do have the option of purchasing supplemental insurance to cover a portion of what the provincial medical system doesn’t take care of, but not everyone can afford it. It’s even more critical these days when so many people are losing their jobs due to the economic downturn. I tell you, this can be a combination of the perfect storm and the ultimate catch 22.

So what do you do when you’re in pain and trying to recover from the “sticker shock” cost of being ill? I wish I had some simple answers, but I don’t. I have protested one bill I received from a U.S. hospital, so we’ll see where that goes. If you have any ideas to share with us, please feel free to leave a comment. Perhaps if we get a dialogue going, we can all get some insight into how to deal with that bill thing and be able to put more of our energy into getting our lives back.

Welcome to our new Master of Ceremonies

Welcome to Marlene Robertson, our new Master of Ceremonies around here. She has graciously volunteered to keep this blog running regularly, to free me up to write the play, edit the play, fundraise for the play and eventually stage the play. So you can now watch for regular updates - two to three times a week.

We appreciate all your comments, so please keep them coming.

Here's Marlene's first message.

*************************************************************************************

“You’re such a pain in the neck; Harry is a total pain in the butt.” How many times have we all made these statements and probably many more variations? These are relatively painless pains, and quickly pass. Nothing life-threatening here. But what happens when the pain doesn’t go away? What happens when we live with pain every day, sometimes for weeks, months or years? What happens if the pain never goes away? Well I suspect some of the people we have called a pain in the neck or a pain in the butt live with pain every single day of their lives, but we can’t conceive of that so we think they should just get on with life or suck it up or just grit their teeth and quit complaining. Ah, if only it was that easy. Wouldn’t life be grand?

I’m Deborah’s mom, Marlene, and I'm going to take over as "blog master" here, as the Pain Diaries becomes a reality. Over the years I’ve had some pain: a broken wrist, surgery, root canal and many years of migraine headaches, but until I was in a very bad car accident, I truly had no idea what pain was all about. Lots of bumps and bruises and stitches and six broken vertebra in my neck and back. Paralyzing, numbing, never-ending scary pain. But I am among the blessed because almost eight months after the accident, all six vertebrae have now healed, the pain is pretty much gone and my neck is slowly starting to work again.


What would I have done if I had to live with that pain every day for the rest of my life? Could I have sucked it up, got on with my life or grit my teeth? I don’t know and thank God and my Angels I don’t have to find out, but it made me understand that pain can be overwhelming and can literally cripple you. No more skiing, long walks on a perfect summer evening, or taking your kids camping. No more driving the car, making love with a man you adore, a man who has stuck with you through thick and through thin, a man who is suffering as well. Life will never be the same, and as I was so fond of saying throughout my recovery, “I just want my life back.” I have so very much to be thankful for and never again will I judge anyone who is in pain. Never.

In the beginning

There was an idea. There is always an idea. The problem is whether one can germinate the seed into something...be it a novel, a short story, a play, a TV show... The other problem is getting other people to believe in the idea.

Well, I had the idea to write a play about chronic pain. It's something that's not understood and literally thousands of people suffer in silence. They suffer while those around them think it's all in their heads or that they're malingering. They lose their lives figurately, by not being able to work, to care for themselves, to play with their children or have relationships with their husbands and wives; and they lose their lives literally, when they think they can no longer cope.

And finding supporters was much easier than I thought it would be. There are hundreds of caring professionals out there that dedicate their lives to helping people with pain. But there are also hundreds of people that have been touched by pain themselves or know someone who has been touched by pain. I mean, think about it. Pain is universal. No matter where you go on this planet, everyone feels pain.

This blog is dedicated to the sufferers and their friends and families, and the people who try and help them. It will track the making of the play. All of us who are involved, and there are so many, will comment, and hopefully some patients may add their comments as well. If we can touch the life of just one person, we will have reached our goal.

Deb